After Kair's surgery to replace the 'plumbing', in her head,

including valve, fittings and tubes, we were hoping she was 'all better'. Not to be, for my beautiful daughter. She developed an infection and they had to cut her open again, from (nearly) ear to ear, (and now her surgeon left on vacation, to Africa), and remove everything they just installed, just as she was healing. All her cerebral-spinal fluid is now draining from her brain cavity to external bags, so they can monitor and test for infection, as they treat her. Minimum six days until another surgery, with new holes drilled in her skull, new hardware/tubes, then a few days recovery time, if all goes well. Seems like a bad dream, but she's holding up well. Brave girl, my daughter, but this is a deja vu we are all REAL tired of....
Center of pic shows where one tube goes, the other is in the cyst, as they are balanced out by a valve and fittings and connected with/drained by tubes that go to her stomach. Revolutionary system/surgery by Dr Winston, 23 years ago, who just retired.

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